Professional Documents
Culture Documents
Way Ahead
Our early experience in North Lanarkshire
of demonstrating the impact of the
in Control approach JUNE 2009
Cover Picture:
‘Big Heids’ by David Mach on the M8 in North Lanarkshire
Early In Control experience in North Lanarkshire
‘Way Ahead’
Our early experience in North Lanarkshire of demonstrating
the impact of the in Control approach
Foreword
In North Lanarkshire, our aim is We believe passionately that people should
that people may exercise maximum not be denied opportunities because of their
choice and control over their lives, age or the nature of their disability or needs, so
including control over any support the people involved in the project had a wide
they may require. We take great range of needs and circumstances arising from
pride in our efforts to lead the drive towards autism, frailty, dementia, long term neurological
ever more personalised approaches. Indeed we conditions, mental health problems, alcohol
have already individualised the planning, design, related brain damage and learning disabilities.
service delivery and funding for over a thousand Their ages ranged from 9 to 98 years.
people across North Lanarkshire. But, until now,
we have rarely been clear with each person and I would like to thank all the people and their
upfront about the financial resources available to families who were involved as well as the staff
meet their needs. By not doing this we have not in Younger Adults and Finance Sections within
maximised the extent to which each person can Social Work services and Keith Etherington for
truly exercise choice and control. their leadership in this important work. The
testimonies of the people concerned are very
The In Control demonstration project tested out powerful endorsements of the approach taken.
an approach that supported people to undertake As one carer said “being in receipt of In Control
their own assessment of need, leading to a money has given us a life again”.
financial value that we believed was reasonable
to meet their needs; we then invited each person The challenge now is to make their experience
to make best use of those resources in ways that a reality for everyone.
suited their own unique needs and circumstances.
We wanted to test whether we could improve on Origins of in Control and self directed
the traditional way of working and establish a support:
more person centred and flexible approach - one
based on a greater partnership and transparency
It is widely acknowledged that a lot of the
between the Council, its social work staff, people
early work and thinking around in Control and
and their families. This meant we needed a way of
self directed support has its origins in Scotland
genuinely sharing decision making. By creating
and, in particular, in North Lanarkshire,
a simple framework to allocate resources, we
emerging from the work and thinking that
established for each individual and their family a
developed during the closure of long stay
ring fenced pot of resources – we gave them their
hospitals for people with a learning disability.
own individual budget. We were then free to help
Since the early part of this decade, self
them plan how these resources should used to
directed support and individual budgets have
achieve a set of agreed outcomes.
been further refined and feature strongly in
the reform of social care underway in England.
The In Control approach to organising social care
The demonstration work in North Lanarkshire
has come to be known as self directed support,
has drawn heavily from some of the learning
and is based upon a 7 step process.
and resources that have emerged from this.
2) Making a support plan – people who have an 6) Living life. When people are supported in ways
individual budget, plan how to spend the money. and at times that are right for them it is possible
If people are to have support that is personal to to live a full and active life.
them there needs to be a good plan describing
what it needs to achieve and what it will look 7) Seeing how it worked. It is important to
like. The things that the plan needs to achieve take time to look at how well the plan has
must be agreed by the individual/family and the worked and to show what the money has been
social worker, but it is important that the person used to achieve.
and those close to them lead on how this is to be
achieved. Some people, but not all, have help from
a social worker to produce a plan. ‘Importantly, as a Council, this work has allowed
us to test the application of a resource allocation
3) Agreeing the plan. As the local authority is system so that we may consider such an approach
making money available to fund the support plan on a whole system basis. Critics of In Control say
it is reasonable that they will want to agree how the use of a resource allocation system is simply a
that money is used. The local authority also needs way of gate keeping finite budgets. But any social
to ensure they are happy with any risks the person care system requires us to do just that, and most
may be choosing to take. are so opaque as to be impenetrable to people who
may need support. This approach, in contrast, was
4) Organising money. Once the money and the transparent.’
plan are agreed the person needs to be in control
of the money so they can direct their support. Duncan Mackay
There are different ways this can be achieved. Head of Social Work Development
Taking the money as a direct payment is not right North Lanarkshire Council
for everyone, so other ways of being in control of
how the money achieves what is important to the
person need to be available.
of her money on extra physiotherapy in her own be too many restrictions around this, so were very
home and to help her get to a local resource, interested when we talked to them about being
where she can meet people and gets the chance involved in the In Control demonstration work in
to enjoy other therapies, including yoga and the area. After finding out how much money was
aromatherapy. available to John in his individual budget, John, his
mum and dad developed a support plan. The first
Recently Susan went into Hospital to have her thing they did was to recruit a 6th form student
medication reviewed. The stay in Hospital was from John’s school as a personal assistant, to share
longer than had been anticipated at first, but in, and support him to take part in some social
during this time Susan’s personal assistant was events and activities, mainly at weekends. So far,
able to change the hours she worked so she was they have been to music events, sport activity and
around at weekends when Susan was at home. on a film making course together. John has also
Since Susan was fully discharged from Hospital used some of his money for skiing lessons and
she has made changes in how she uses her for drumming tuition so he can be part of a local
budget. She has increased the hours of support drumming band.
she buys each week from her personal assistant
whilst still keeping within her overall allocation. John’s dad said ‘It has been great for John – having
Being able to use her budget in this way and make the flexibility and independence to try new things
changes has been important to Susan and her with support available. ’
family and has given them greater choice, control
and peace of mind. Next year, John’s personal assistant will be going
off to University, but as it’s still local, she thinks
Susan feels ‘My plan is working very well and I she will still be able to support him in this way.
am enjoying the flexibility of it and being able to John’s mum manages the money and his personal
decide when and what I want.’ assistant is paid through a local payroll firm who
deal with her salary.
What having a individual John has been using an individual budget for
about 6 months now. His big adventure is that
budget meant to John later in the summer he will be going on a trip to
New Zealand without his mum and dad to see his
sisters and young nephew. He plans to pay the
fare of a family friend who will take him over and
come back with him.
brothers or sisters, and no relatives who are willing The evaluation process
to help with the care of my mother, the entire job
of looking after her fell to me. She is a really lively The evaluation of the demonstration project
person but the strain of caring for her twenty four was carried out by Prof Chris Hatton from the
hours a day was beginning to get to me. I used University of Lancaster and John Waters from In
quite a lot of my pension money to buy in help Control in England.
from people.
The evaluation included contributions from a
Luckily, when I had practically reached the end of range of relevant stakeholders including:
my tether, North Lanarkshire included me on their
In Control pilot scheme. "" people who were allocated individual
budgets
Now we have money to pay for care for my mother "" their families
– in her own home – so that I can have a break for "" Care managers and frontline Social Work
twelve hours a week. staff
"" Social Work managers
However, the best part is that we can now do what
my mother loves best in the whole world – go The evaluation was undertaken in two parts.
travelling.
The first part involved gathering information
using structured interviews and evaluation
questionnaires and took place in early April
2009. Separate questionnaires were completed
by people in receipt of an individual budget;
their families and/or carers, and frontline Local
authority staff who had been involved with at
least one person in the demonstration work.
We don’t go to far flung corners of the earth but Part 1: Information gathering
we are able to take little trips to Scotland, England
and Ireland. Last autumn we were able to rent Information was collected from each of the
a cottage in Shropshire and my cousin and her three stake holder groups using a standard
daughter came and stayed with us. These were questionnaire, designed to measure the effect that
people my mother hadn’t seen for years. For her having an individual budget had on that group.
birthday, we booked an extra special few days in An independent researcher helped people to
Aviemore – and somebody else did the cooking for complete these questionnaires. Using a simple 3
a change. Later this month, we’re off to Tiree for a point scale of:
week. Holidays make my mother come alive. Her
dementia never seems so bad and she has things "" Helped
to talk about and to tell other people. Being in "" Made No Difference
receipt of In Control money has given us a "" Made things worse
life again.’
the questionnaires asked people to judge whether
having a individual budget had affected a number
of areas of life. The questionnaires used had
previously been employed in evaluations of similar
work in 3 other local authorities in the United
Who supports
social life
Mental health
Control over
control sup
Money
Weekdays
Weekends
by North Lanarkshire.
with family
your life
you
How people used their individual budget N. Lanarks IB helped Cambs & Worcs IB helped
assistants) 60
"" Holidays 20
safe home
Evenings
Home
Holidays
safe out
Relationships
dignity
with friends
electric scooter)
with
diverse in age and gender and almost all were Staff working with people using individual
living with the person using a individual budget budgets
and were involved in a caring role for over 20 Questionnaires were returned from 10 Social Work
hours per week. All but one of the family carers staff, all of whom had been involved in supporting
reported feeling that they were very much an people develop their individual budgets in North
equal partner in developing the person’s Lanarkshire.
support plan.
ALMOST ALL SOCIAL WORKERS SAY THAT INDIVIDUAL
INDIVIDUAL BUDGETS HELPED ALMOST ALL CARERS WITH… Almost
BUDGETS HELPallWITH…
social workers say that individual budgets
Individual budgets helped almost all carers with... help with...
100 100
Percentage of people
80 80
Percentage of carers
60
60
40
40
20
20
0
Continue Quality of life Wellbeing Social life Other Choice and 0
caring relationships control A B C D E F G H
N. Lanarks IB impact Cambs, Worcs. Herts IB impact N. Lanarks IB helped Cambs & Worcs IB helped
KEY: A Making a positive difference to people’s lives; B Helping people plan creatively;
C Getting the right amount of help to people; D Getting help to people in a timely
way (when they want it); E Helping people to maintain existing support networks;
INDIVIDUAL BUDGETS HELPED SOME CARERS WITH… F Supporting people to take an active part in their community; G Supporting people
Individual budgets helped some carers with...
to take control and make choices about their lives; H Developing support that is
tailored to the fer needs ofreaan
tiv individual.
ce t y g n l
100 en ely un wa tin ea tro s ore
d
mo ely exis tak unity on tail l
dif ta im cin to e c live
e es lan
h
rig op
le at ) a
int s le m ak ir t is idua
sitiv liv he to pe le in t it op om o t the ha
po le’s le p gt ma rk pe ir c le t ut rt t indiv
g a op op op an
pe ey w to two ing in the op bo po
kin to pe pe ttin elp ple ne ort pe es a up f an
Ma ing Ge of h to
lp en th p eo port u pp part t ing hoic in g s ds o
lp e g p S r c p e
80 He g h (wh lpin su ive o
pp ke velo e n
e
ttin He act Su d ma De to th
Ge an
60
HELP WITH…
Some social workers say that individual budgets help with...
40 100
80
20
Percentage of people
60
0
Finances Paid work Relationship with person
40
N. Lanarks IB impact Cambs, Worcs. Herts IB impact
20
individual budget on any area of their life. In most N. Lanarks IB helped Cambs & Worcs IB helped
10
SOCIAL WORKERS’ CONFIDENCE…
Social workers' confidence
Social workers' confidence
Part 2: Shared learning event
10
8
8
Part 2 of the evaluation took the form of a
6
shared learning event held in Motherwell on
28th April 2009. The purpose of the event was
6
2
2 the collective experiences of people involved in
0 taking forward self directed support in North
Lanarkshire. Participants at the learning event
0 Offering support Helping develop Advising on Helping people Helping people
Offering support
to complete Helping develop
person-centred Advising on
self-directed Helping Helping
people organise
review their people
& arrange
to complete
self-assessment person-centred
plans self-directed
support & review
supporttheir organise & arrange
support
self-assessment
questionnaire
questionnaire
plans support
personal &
budgets
personal budgets
support support
were given information from the first part of the
Not at all confident Not very confident Confident Very confident evaluation and took part in one of three separate
seminars for different stake holder groups,
Not at all confident Not very confident Confident Very confident
Social Work staff were asked to comment on their following which all participants worked together
experience of self directed support responses to identify key themes issues emerging from their
included: personal experience of self directed support, the
aggregated evaluation data, and the seminar
"" ‘In some way there was more responsibility discussions.
on the service user to find and set up services,
so may be there was some reduction in my Participants at the learning event included:
workload. However as this was the first time
I had used an In Control model I worked at "" Local people who had an active personal
every step with the service user.’ interest in social care this included people
"" ‘Individual budgets are an added workload.’ who needed support and their family
"" ‘It has made me think differently about members. Many of this group had direct
how people can use allocated funds to live experience of individual budgets, or were
their lives with support that is valued and about to take up a individual budget.
inclusive.’ "" Social work staff who had worked to
"" ‘It has allowed families to design support support people directly with individual
for children in a way which suits all family budgets.
members. It allows for thinking “out of the "" Managers and other senior staff with
box” and making supports individual to each strategic responsibility
family. It also makes families accountable for
their supports and spending of monies for
the child thus shifting the control.’ Summary / Key Messages from
the Shared Learning Event
Social Work staff were asked to identify areas
in which individual budget would mean they Before talking about what people said at the
needed improved knowledge or skills three themes event, it is important to note the commitment
emerged: and spirit with which people engaged at the
event. First, people’s commitment to discussing
"" Resource allocation and financial individual budgets was shown by the fact that
monitoring the event was fully subscribed, with many people
"" Monitoring how budgets are used who had intended to attend only the morning
"" Thinking creatively about options for support staying all day. Second, the event included people
using individual budgets with very different
When asked about the wider social care system needs and in very different circumstances, family
and if it needed to change Social Work staff members, practitioners who had helped people
identified four common areas for change: use individual budgets and a range of managers
who had been involved in the demonstration
"" To be more localised. project. These different groups of people worked
"" To become simpler and faster. together in a spirit of mutual respect, with a
"" More resources to allow social workers to shared aim across everyone of working together to
spend time with people using individual understand how individual budgets were working
budgets. in North Lanarkshire and how they could be made
"" More clarity about the process. to work better.
"" Information and support for people direction of travel for the future. The approach
employing personal assistants, in terms of is consistent with progress already begun on
information and support on employer liability, developing self directed support, to empower
payroll issues, CRB checks etc. people who need support to gain this in line
"" Step-by-step guides to help all stakeholders with their own personal needs and wishes, to
through the individual budget process. achieve agreed life outcomes in a transparent and
"" How potential conflicts between individual equitable fashion.
budget holders and family members would be
resolved. Before the whole system introduction of the In
"" How flexible the individual budget could be Control approach can be considered however,
when someone wanted to make changes to further steps are needed:
their personal support plan.
"" For people who were already using an "" People with support needs, carers, service
existing support package that they valued, providers and politicians need to be
information on weighing up the pros and engaged in how existing systems and
cons of personal support compared to what arrangements need to and can change
people were already using. "" A range of materials for staff, service users
"" Where responsibilities lay in terms of ‘duty of and other key stakeholders needs to be
care’ and dealing with unacceptable practices. available to explain and explore how this
approach can deliver more positive life
Looking ahead and key messages for In
outcomes, social inclusion and citizenship.
Control in Scotland
"" North Lanarkshire appropriate “adaptations”
Although most of the day focused on In Control in
to the RAS – its supported self assessment
North Lanarkshire, people at the event also raised
questionaire, allocation of financial
some key messages for social support and/or care
award to the scoring and overall financial
systems in Scotland more generally, including:
affordability checked out
"" In Control provided the opportunity for a "" Consideration of ongoing support for staff,
real transformation in how people were service users and carers to work in this new
supported, with some people talking about fashion need to be on hand for those who
In Control becoming the new core business need this
of Social Work services. "" Agreement on which groups of individuals,
"" Such a shift also had the potential to geographic areas, age groups or care groups
radically improve the openness and should next be identified for the approach
transparency of support systems for people to be applied
who use these systems. "" Consideration of service user contributions
"" Such a shift would require major changes to meet some costs associated with
to current systems, with political leadership support plans needs agreed
required at a local and national level "" A process to agree a staged route for
"" Current complex processes for delivering political agreement on progressing this
resources to people using support need work needs to be considered
to be untangled and made much more
transparent to people. ‘Social Work in North Lanarkshire is committed to the
"" Increasing transparency and flexibility radical changes we think are needed to help people
in how money can be used to achieve to improve their lives. We believe that this is the right
outcomes for people may result in a major approach to the challenges faced by people, who
increase in demand, for which systems and need assistance, their families and communities. This
responses would have to be ready. might be done by providing advice, help to plan their
lives and/or to make direct support arrangements.
Conclusion North Lanarkshire intends to continue its leadership
The learning from the In Control demonstration role in self directed support and therefore we have
Project in North Lanarkshire, and from wider entitled this report: “Way Ahead”.’
findings from elsewhere in the U.K., convinces
North Lanarkshire Social Work staff and managers Bobby Miller
associated with the work so far, that it is the Manager, Younger Adults
in Control Partnerships Tel: 0121 708 3031 • Email: admin@in-control.org.uk • Website: www.in-control.org.uk