Running head: SHARING ASSESSMENT RESULTS WITH SCHOOLS
Psycho-educational Assessment of Children: The Psychologists Responsibility When Parents Refuse to Share Results with the School
Shelina Hassanali (00273150) EDPS 604: Applied Ethics in Psychology August 4 th , 2012 2 SHARING ASSESSMENT RESULTS WITH SCHOOLS Psycho-educational Assessment of Children: The Psychologists Responsibility When Parents Refuse to Share Results with the School As professionals and parents alike are becoming increasingly aware of the importance of early intervention for learning difficulties in children, the use of psycho-educational assessments is becoming increasingly important. There are many benefits to psycho-educational assessment, however the extent to which assessment results can be beneficial for a student is dependent on who has access to these results as well as how the information gleaned from the assessment is used to increase the chances of academic and personal success for the child. This paper will focus on the ethical dilemma faced by psychologists when parents refuse to share assessment results with the childs school, including information in the literature as well as an in-depth study of ethical decision making based on a relevant vignette. What is Psycho-Educational Assessment and Why is it Important?
You are a psychologist working in a school board in which there is a policy that parents must give informed consent before results of a psychological assessment can be discussed with school staff, or before a report on the results can be placed in the childs file. After assessing a child who had been experiencing learning problems since beginning school and discussing the assessment results with the parents, you are dismayed to discover that the parents refuse to have the assessment results discussed with school staff because the results indicate that the child needs special resource help in basic skill areas. The parents say that only dummies have to get that kind of help and that they are not willing to have their child labelled as a dummy. Although you try to explain the potential benefits of such help and to negotiate at least a partial sharing of information with school staff, the parents adamantly refuse and walk out of the interview. You are aware that, even if the child cannot receive special resource help, there is much information from the assessment that could help the teacher provide a more successful academic program (Sinclair & Pettifor, 2001, pg. 158). 3 SHARING ASSESSMENT RESULTS WITH SCHOOLS If I were faced with this situation as the psychologist, I would engage in the steps of the ethical decision- making process as outlined by the CPA (2000), which are discussed below. 1. Identification of the individuals and groups potentially affected by the decision.
There are many individuals and groups who could potentially be affected by the decision I choose to make. First and foremost, the decision would undoubtedly affect the child. According to the vignette, this child has been struggling ever since he started school. My decision could result in either negative or positive consequences for this child, including his school experience and educational outcome, along with potential consequences in many other aspects of his well- being. Second, the decision would affect the parents because my decision will directly impact their child, and depending on what decision is made, it might impact their interactions with teachers and school administration. Third, the school staff (including teachers, support staff, and administration) would be affected because information would be either shared with them or withheld from them, thus impacting their teaching practices, classroom environment, and future interactions with the parents. Fourth, my decision may affect the school board itself, in the event that the parents are unsatisfied with my actions and pursue further steps with the board. Fifth, the decision that I make will impact me both personally and professionally, and possibly even legally. Last, the decision I choose to make has potential to affect the regulatory body as well as the reputation of the profession of school psychology in general, in the event that a formal complaint is filed.
2. Identification of ethically relevant issues and practices, including the interests, rights, and any relevant characteristics of the individuals and groups involved and of the system or circumstances in which the ethical problem arose.
There are quite a few relevant issues regarding the interests and rights of the various parties involved which can be examined using the Canadian Code of Ethics for Psychologists (2000). These are discussed below. Principle 1 of the code discusses various aspects related to respect for the dignity of persons. Principle 1.8 states that psychologists must respect the right of clients to safeguard their own dignity. In this case, the parents believe that their child may be labelled as a dummy and it could be hypothesized that they do not want this to happen for many reasons, one of which may be the fact that such a label would be a threat to their childs (and maybe also to their own) dignity. Principle 1.16 requires psychologists to seek active participation from others in decisions that affect them and to integrate their wishes as much as possible. This means that although I might disagree with the parents, I should still consider their wishes in decisions that affect them and their child. 1.30 states that consenting parties have the option to withdraw consent at any time without prejudice, which needs to be heavily considered in this case as the parents have the right to withdraw any consent they initially gave to have their child assessed and to have those reports shared with the school. Finally, 1.45 under this principle states that psychologists are required to share confidential information with others only with the informed consent of those involved. 4 SHARING ASSESSMENT RESULTS WITH SCHOOLS Therefore, I would need the consent of the parents before I share the assessment results with staff who work with their child. Principle 2 of the code discusses responsible caring. Under this section, 2.1 requires psychologists to protect and promote the welfare of clients, and 2.2 states that we must avoid harm to clients. An important consideration at this point would be to answer the question of whether the child or the parent is the client in this situation. Although the school or the parents may have requested this assessment, in this case the client is the child. Therefore, my actions must protect the welfare of the child and avoid harm to the child. Principle 3 focuses on integrity in relationships. In 3.1, it is explicitly stated that psychologists will not participate in or be associated with dishonesty. In addition to other parts of the code, this principle would be violated if I decided to share the information with school staff without consent of the parents. 3.40 requires psychologists to seek consultation from colleagues or appropriate groups and committees when faced with difficult situations, and this would be an option which may be available to me. The fourth principle in the code of ethics is that of responsibility to society, which mainly focuses on promoting positive societal change. This principle is less relevant in this particular case study. 3. Consideration of how personal biases, stresses, or self-interest might influence the development of or choice between courses of action. In addition to the ethical requirements/considerations to be made in this scenario, it is also important to consider how personal biases and self-interest might come into play. I personally feel that the sharing of this information with the childs teachers is extremely important because it has the potential to affect his academic and overall development and educational outcomes, and this has implications for his future. My own bias in this area may lead me to make the decision to somehow convince the parents to consent to the release of information or to find some other way to ensure that the teachers have the most information possible in order to best support this student. Self-interest may also come into play in this situation because I would also be inclined to protect myself professionally, including avoiding potential censure from the school board as well as from the regulatory body with which Im registered. This would be a difficult consideration, especially if the school board and the regulatory body differ in opinion regarding what the best course of action would be. 4. Development of alternative courses of action There are a number of possible courses of action for this scenario. One possible action would be to simply accept the decision of the parents and refrain from sharing the results of the assessment with anyone as long as they withhold consent to do so. Another possible action would be to share the results of the assessment only with those staff members who teach the child directly, if it is determined that it is in the best interests of the child. A third option might be to keep the results confidential for the time being, and contact the parents at a later date to discuss options or to see if they may have changed their decision, or wait until the parents contact me themselves. Yet another action might be to keep the results confidential but somehow provide tools and strategies for the classroom teacher to use, perhaps 5 SHARING ASSESSMENT RESULTS WITH SCHOOLS via general staff professional development for all staff. Finally, perhaps general parent information sessions can be held for all parents regarding various student difficulties and the supports which can be put into place for all children, thus providing an opportunity for the childs parents and all other parents to gain knowledge in the area. 5. Analysis of likely short-term, ongoing, and long-term risks and benefits of each course of action on the individual(s)/group(s) involved or likely to be affected Depending on which course of action is chosen, there are many potential risks and benefits for the various parties involved. If it is decided to refrain from sharing the assessment information with the school until the parents consent, there are many risks. The child may continue to struggle and as he gets into higher grades, his struggles may only increase. This could potentially cause academic failure which may be detrimental also to his self-confidence and could also affect social relationships. Long-term, this has implications for his future career options, financial stability, and overall quality of life. A personal risk to me might be censure and loss of employment if I keep the information confidential and the school board determines that they were privy to the assessment information. The only benefit to this choice is that the parental wishes and right to withhold/revoke consent will be upheld. The parents may see another benefit in that the child will not be labelled, however given the history of constant struggles in school, the child may already be informally labelled as a struggling student by teachers and peers. The lack of a label could in fact be seen as a risk because in many cases a label helps a child to receive financial and other supports at school. There is also the option of sharing the assessment results with the school despite the withholding of parental consent to do so. There are many risks to this decision, the first of which is that it goes directly against many of the points in the Code of Ethics (2000), including the principles of informed consent to share information and the right of the parents to withdraw consent at any time. Another risk to me personally would be potential censure and subsequent loss of employment from the regulatory body if a complaint is brought forth against me from the parents. I may also suffer a poor reputation in the profession. Additionally, I may be putting myself at risk for future law suits in the event of emotional or other damages caused by my decision to break confidentiality. The parents have indicated that they feel their child will be at risk of labels if this information is shared. Regarding benefits, if the information is shared with the school, an appropriate plan and academic supports can be put into place immediately to support the childs growth and development. This could mean improved academic outcomes and improved possibilities for the childs future. The information would also be beneficial to the teacher who will be provided with instructional and other strategies, which may be beneficial to the classroom environment in general. As mentioned previously, a label could also be beneficial as it may open the doors to increased resources to support the child. The third possible option is to keep the results confidential as per the parents request, but contact them at a later time to discuss the potential of sharing the results with the school and the benefits of doing so. The risks of this choice are that the child will continue to struggle in school for the time being, and that the school board which employs me may feel that I have gone against my duties as a psychologist who is employed by them. The potential benefits are that the principles of informed 6 SHARING ASSESSMENT RESULTS WITH SCHOOLS consent to share information and the right to withhold consent are upheld. A short-term benefit is that the parents will have some time to process the information prior to me attempting to discuss it with them again, which may change their perspective. In this scenario, I would be upholding the ethics of the profession while still engaging in due diligence regarding the best interests of the child. Another option is to keep the results confidential so as to uphold the parental rights to informed consent, but still increase staff competence in the area by holding professional development sessions for all staff at the school. The risk of this option is that the child will not receive a formal diagnosis which may mean that there will not be additional resources available to support him. However, the benefits are that the parental right to informed consent to share information will be upheld, and school staff will still receive teaching strategies and ideas which may help to support not only this particular child, but also potentially help other students as well. Other benefits include the fact that I will be acting according to the ethical principles to which I am held, while still providing supports to the school as part of my job with the school board. The final option is to once again keep the results confidential as per the parents request, but to hold parent information sessions for all parents whereby the general process of psycho-educational assessment, including referral, assessment, outcomes and interventions could be explained to and discussed with parents. Risks include the fact that once again, the child will not receive the tailored support in the classroom. Additionally, teachers would not receive information which would help them to support the childs learning. However, the benefit to this option is that all parents will receive information about psycho-educational assessment and the benefits of it, including the benefits of sharing information with the school. If the parents in this particular situation chose to attend one of these sessions, another potential benefit might be that they could change their mind and agree to share the results without coercion from myself or the school. 6. Choice of course of action after conscientious application of existing principles, values, and standards. After considering all of the ethical principles involved as well as engaging in a thorough risk/benefit analysis, I would finally make my decision. I would not simply file the assessment results away and forget about this student because this could have serious detrimental effects for him. It would not be in the best interests of the child, and to me personally, withholding information which could tremendously help this child would be somewhat unethical, too. On the other hand, I also would not decide to go against the parents wishes and share the information with the school because this would be extremely unethical and would go against basic principles of the right to revoke consent at any time as well as the right to informed consent prior to sharing of information with a third party. My decision would be to proceed with a combination of the third, fourth, and fifth options. I would respect the parental decision not to share information with the school, and would keep this information confidential. After a period of time, however, I would attempt to arrange a meeting with the parents to re-consider their decision, if they are open to doing so. In the meantime, I would hold staff professional development sessions for all staff related to best practices to support various learning needs in the classroom. I would also hold parent information sessions on the topic of psycho-educational assessment. 7 SHARING ASSESSMENT RESULTS WITH SCHOOLS Steps 7-10: Action, Evaluation, Assumption of responsibility for consequences, and Appropriate action to prevent future occurrences of the dilemma After making my decision, I would act on it as discussed above. I would assume all responsibility for any consequences which arise as a result, both personally and professionally. I would rely on the profession and its ethical guidelines and processes which I have worked through, in hopes that I have come to the best possible solution. The parent education sessions which I will facilitate will help to ensure that future occurences of this nature are reduced, because parents will have a wealth of information related to psycho-educational assessment, including all of the steps involved. They will have a better understanding of learning difficulties and strategies which can be used to support their children, as well as the positive effects of identifying difficulties early and of early intervention. In future meetings with parents who are initially consenting to psycho-educational assessment for their child, I will discuss the possible outcomes (including labels) and the benefits of sharing results with the school.
Bell, S.M. (n.d). Psycho-educational Assessment: How to Read, Understand, and Use Psycho-educational Reports. Retrieved from http://www.cls.utk.edu/pdf/keys_ld/chapter2_pa.pdf Sinclair, C., & Pettifor, J. (2001). Companion manual to the Canadian Code of Ethics for Psychologists (3 rd
ed.). Ottawa, ON: Canadian Psychological Association.