Professional Documents
Culture Documents
This article will review the different methods used to control the sexuality and
fertility of Brazilian women with cognitive disabilities throughout the twentieth
century, and how practices such as eugenic sterilization, institutionalization,
and other repressive measures of social control grew out of cultural notions of
gender, race, class, sexuality, and disability. The article will first outline eugenics practices and the vulnerability of women with cognitive disabilities in
the United States and Europe. It will then trace the historical treatment of
Brazilian women with cognitive disabilities. Finally, it will describe modern
cultural perceptions and practices related to the sexuality and fertility of Brazilian women with cognitive disabilities.
KEY WORDS: sexuality; parenthood; intellectual disability; sterilization; eugenics.
INTRODUCTION
For much of the twentieth century, individuals stigmatized by gender, race,
poverty, disability or sexuality were subject to extreme methods of social control in the United States and Europe. Women with cognitive disabilities3 were
considered especially dangerous as it was thought that feeblemindedness
could be transmitted from generation to generation. Thus, a great deal of effort
was expended to prevent women identified as cognitively disabled from having
children. Practices perpetrated on these women included compulsory institu1
Block
tionalization and sterilization, as policy makers focused on ways to reduce perceived threats to the social order. However, theories and approaches to social
marginality differed from place to place as professional theories were influenced by cultural beliefs in particular social contexts. In Brazil, sterilization and
institutionalization were practiced upon women, but were never mandated by
the state. In the absence of official policy, cultural beliefs and professional
opinions shaped the practices used by professionals and family members to
regulate the sexuality of women with cognitive disabilities. This article will
review the different methods used to control the sexuality and fertility of Brazilian women with cognitive disabilities throughout the twentieth century and
how such practices as eugenic sterilization, institutionalization, and other repressive measures of social control grew out of cultural notions of gender, race,
class, sexuality, and disability.
In 19951996 I conducted ethnographic and archival research in Brazil on
the topic of cultural perceptions and professional theories of cognitive disability
with a focus on sexuality and fertility control. I collected historical documents,
interviewed dozens of professionals, parents, and people with disabilities, and
conducted participant observation at several vocational and residential programs
in two of Brazils largest cities. Brazil is perceived as underdeveloped (one
author even used the term retarded) in the realm of economics, politics, and
in the social service systems (1). During the course of my research, Brazilian
human service professionals expressed to me that Brazil is 20 years behind the
United States. This implies that Brazils service system developed through the
same evolutionary progression as the system in the United States. It also implies that practices in the United States are, and have always been, more progressive than practices in Brazil. Both of these assertions are false. Actually,
Brazils system developed quite differently than the system in the United States
and was, in many ways, more progressive and humane. The root of this
difference lies in differing cultural definitions of cognitive disability, gender
and sexuality, and also differences in the eugenics movements of the two countries.
upper class dominated because of their superior genetic heritage; the poor remained in poverty because of their degenerate genes.
Unlike in the United States, there is no cultural legacy affirming and legitimizing the sterilization of people with cognitive disabilities in Brazil. Sterilizations conducted for convenience or for eugenics did take place, but were comparatively rare. In the United States tens of thousands of individuals with this
diagnosis were sterilized during the first half of the twentieth century (4). Because of historical differences, such as the influence of Lamarckism on the
Brazilian eugenics movement, religious, and humanist influences, the Brazilian
eugenics movement did not unite to lobby for the large-scale segregation of
people with cognitive disabilities.
Early diagnoses of cognitive disability, usually based on observation,
often coincided with regional, class, and racial designations. As in the United
States, the eugenics movement in Brazil was sparked by professional concern
over social problems, such as rapid urbanization, caused by the emancipation of
the slaves and immigration (5). The movement included a continuum of eugenics theories, both Lamarckian and Mendelian. In Lamarckian-influenced eugenics, it was thought that genetic traits were influenced by environmental factors, such as improved sanitation, better hygiene, and access to better medical
care and clean water. Such beliefs led Brazilian eugenicists to adopt slogans
such as to sanitize is to eugenize and sanitation-eugenics is order and progress (5, pp. 119121). In 1918, Belisario Penna wrote about the health problems of rural Northeastern Brazilians:
In a country of sick and illiterate people like Brazil, the greatest primordial worry
of conscientious policy makers should be physical, moral and intellectual sanitation of
its inhabitants.
There is no prosperity, there can be no progress amongst ignorant individuals, and
much less so when ignorance joins with sickness, vice, physical and intellectual deficiency, and the destruction of essential organs.
Disgracefully, this is the case of Brazil, which easily counts 80% of its illiterates
and other such inhabitants affected by various avoidable illnesses. These individuals
vegetate in the cities, the countryside and the remote interior, consuming without producing, rendering the nation anemic, or at least hindering its impulse toward progress
and expansion. (6, p. 7)4
Thus the poverty-stricken people of the rural interior were viewed not as social
threats, but as pitiable and their problems avoidable through improvements in
public health and mental hygiene (6,7,b 8).
Nancy Stepan (1976) notes that perceptions of Brazil as a vast hospital
and pointed to perceptions of a great mental and medical chasm separating the
urban elites from the mass of people living in rural poverty (9). This gulf is
evident in Pennas descriptions of his interactions with the local population
during his travels:
4
10
Block
Centers of population [were] between 60 and 300 individuals, the majority of them
idiots, cretins, crippled or paralytic. We searched in order to find, with difficulty, a semiidiot, capable of giving some quick information. (6, p. 10)
This statement evidences a low opinion of the cognitive abilities of the people
encountered during Pennas research in rural communities. Yet, despite preconceptions based on race, class and regional differences, Penna and most other
professionals, especially those writing before 1920, were careful to stay away
from models of genetic inheritance based on race and class. This differs from
the United States, where rigid Mendelian models of the transmission of pathological genetic traits across generations, espoused by Henry H. Goddard (1913)
and others, were widely accepted by the end of the second decade of the twentieth century (10). At a time when institutional models of strict segregation
were being put into place in the United States, Brazilian professionals were
concerned with using science and technology to improve the lives of people on
the margins of society. Since better health was thought to lead to better genes, it
was not considered necessary to institutionalize people.
However, in 1920s some factions of the Brazilian eugenics and mental
hygiene movement examined the practice of sterilization and its potential uses
for social control and the prevention of racial degeneration. Individuals with
cognitive disabilities were included in lists of social threats alongside criminals,
degenerates, vagabonds, psychopaths, etc.
The right to perpetuate their suffering, deformity, and misery cannot be allowed to the
sick, degenerate, feeble, and gravely intoxicated. The present generation has the obligation to protect and defend future generations. To create pain is a crime against humanity;
to create monstrosity is a crime against the race. The marriage of those ill in spirit and
body, freaks, cacoplasts5 and defectivesthe producers of abortions and martyrsought
to be forbidden, or, at least, should not be sanctioned by law. (12)
Between the 1920s and 1940s there were three methods discussed by Brazilian
eugenicists to reduce these populations: prenuptial examinations to prevent the
unfit from marrying, segregation apart from society to prevent reproduction,
and eugenic sterilization.
Over the course of two decades, Dr. Renato Kehl, founder and editor of
the Boletim de Eugena (Eugenics Bulletin), published dozens of books and
articles in support of extreme (negative) eugenics policies, including eugenic
sterilization (Kehl, 1921, 1923, 1925, 1933, 1935, 1938, 1942). Kehl was explicit about his goals, citing American, German, and English sources on the
efficacy of sterilization:
In order to achieve thorough results sterilization would need to be applied compulsorily,
be of a permanent nature, and on a vast scale, and must not spare even the individuals
5
Goddard (1913) coined the term Kallikak to refer to a family he studied. The term comes from
the greek words kallos (beauty) and kakos (bad) (11). The term kakos was adopted internationally.
Cacoplast and cacogenic refer respectively to bad blood and bad genes.
11
that appear superficially normal but are, nevertheless, intrinsically defective. Such cases
are not rareon the contrary. Every day individuals are examined that married under
these conditions, and, even when married to a normal person, had degenerate progeny.
(13, p. 156)
Most mental hygienists and eugenicists were less specific on the issue of race,
especially those based in Rio de Janeiro where one of the founders of the field,
Dr. Juliano Moreira, was himself a mestico from a good family in Bahia.
When discussing pathological inheritance, it was common for Brazilian
authors to cite Goddards (10) research on the Kallikaks, Dugdales (1910)
research on the Jukes and other eugenics theorists from the United States and
Europe (20). Thus potential for inheriting cognitive disability was also of concern to Brazilian professionals (15,21,22,23). During a June 1930 meeting of
the Brazilian League of Mental Hygiene (LBHM), gynecologist Juana de Lopes
cited the celebre Kallikak family during a discussion regarding dominant
and recessive pathological inheritance (24).
Paulo de Godoy Moreira e Costa (1927), discussed potential role of negative eugenics in the future of the Brazilian race: The future generation of
Brazil depends on it; the birth of a new, stronger, healthier, better looking nationality depends on it (23, p. 56). For Moreira e Costa, sterilization was a way
to construct a new and improved national and racial identity. His concern about
changing physical appearance clearly involved the motive of whitening the
Brazilian population (25). In addition, eugenic sterilization was constructed as a
means to modernize the country. He described Brazil as developmentally delayed on a national level: [a] confluence of all peoples, in a confused tangle of
migration, still being served by the bull cart of custom rather than the automobile of Eugenics (23, p. 56). Moreira e Costa, Kehl, and other advocates of
sterilization wrote that the practice was safer and more effective than other
forms of birth control, such as incomplete coitus, spermicides, sponges, condoms, and abortion. In the 1930s, the Brazilian government was sympathetic to
Germany and supportive of eugenic ideals. During this time, eugenics laws
were passed to mandate prenuptial examinations (7). Such laws were specifically designed to deny marriage to people with disabilities such as deafness or
mental deficiency (26).
Although a supporter of sterilization in some cases, Dr. Jefferson Lemos
12
Block
(1933) wrote that large-scale sterilization programs would lead to the destruction of not just degenerate stock, but also people of genius (27). To Lemos,
sterilization was acceptable when enacted in individual cases, but he felt legislation would limit the ability of practitioners to make decisions based on individual cases and the dictates of their conscience. He defended the rights of
individuals (if they were doctors) to make their own decisions regarding the
morality of the practice and its merits in certain cases.
Alberto Farani (1931) brushed aside such defense of the rights of individuals, stating, the possible hypothesis of good descendents does not outweigh
the probability of bad elements (21, original emphasis, p. 171). On the issue of
cognitive disability Farani stated:
The church does not allow sterilization, this is clear, but it considers blocking the marriage of feeble-minded individuals acceptable, for example. It is true that the churchs
pretext is not the quality of descendents, but the incapacity to make a valid contract. (21,
p. 174)
13
individuals, give them adequate instruction, and commit them to special asylum colonies
for the time necessary to reveal those that are dangerous or incompatible to a life of
complete liberty. (16, p. 185)
Kehl explicitly stated that only those who had been sterilized should be released
from asylums. He described people with cognitive disabilities and psychiatric
illnesses as human residues the cause of misery, the misfortune of so many
families (16, p. 190). However, he concluded that sterilization might allow
such people to live normal lives. For example, couples that were capable of
taking care of themselves but incapable of taking care of children would be
allowed to exist in childless harmony. Kehl summarized the indications that, to
his view, justified sterilization:
a) Sterilization of the insane and those with perverse instincts; b) sterilization of the
greatly criminal and miserable; c) economic sterilization, in the case of couples incapable of providing, by their own effort, the environment necessary to guarantee the subsistence and education of their children; d) social sterilization in order to reduce the
rising expense of when the social system is forced to sustain asylums for the increasing
numbers of feeble-minded and those unable to work; e) obligatory sterilization, imposed
upon the mentally ill; f) voluntary sterilization, practiced habitually by the tubercular, . . . and by women after repeated pregnancies, when their life is in danger and their
death would leave their children in an orphanage.
In synthesis, these are the principal indications for eugenic measures that, sooner or
later, will be adopted in Brazil as well. (16 original emphasis, p. 194)
14
Block
15
Sexuality control by parents is common in the US and Brazil. I have seen several cases in both
countries where parents went to extremes to prevent their children from marrying. I have also seen
examples where parents have been tolerant and supportive of couples wishing to marry and even
have children.
16
Block
17
Mothers, especially those with conservative social and religious beliefs, are
often concerned with keeping their sons as well as daughters away from corrupting sexual experiences. However, fathers often consider the sexual experiences of their sons acceptable, as long as it is heterosexual experience. It is not
uncommon for fathers to bring their sons to visit prostitutes, sometimes with
regularity. The perception is that, in this one area, they can prove themselves
real men despite their disability. Professionals frown on the practice as more
likely to lead to sexual dysfunction than to encourage the development of
healthy (heterosexual) attitudes. I met several men with cognitive disabilities
whose families encouraged visits to prostitutes, including one adolescent who
was traumatized after his father forced him to visit one on his eighteenth birthday. Boys and men with cognitive disabilities are also vulnerable sexual exploitation by men and women in the community.
In A Problematica do Excepcional (1974), Dr. Aloysio A. DAbreu constructs the problem of sexuality, not as an issue of social threat or social
deviance, but rather as one symptom of a more general sexual repression present in the Brazilian culture. DAbreu documents the fears of parents, and also
the contradictory responses to that fear (41). Over two decades later, I received
some of these same responses from parents and professionals. DAbreu states
that, in 1974, the discussion (though not the practice) of sexuality is generally
repressed in Brazilian society, but especially in the case of the sexuality of
individuals with cognitive disabilities. Interviewing 100 parents (26 fathers and
74 mothers) of 88 exceptional children (21 girls and 67 boys) between the
ages of 5 and 35, DAbreu finds that in 18 cases, the children approached their
parents with questions related to sexuality and that in all cases inhibition was
the most evident reaction (41, p. 44). The following sexual issues are mentioned by parents as points of concern: menstruation, masturbation, heterosexual contact, homosexual contact, using parents or servants as objects of excitation, exhibitionism, using clothes or dolls for sexual ends, and visits to
prostitutes (41, p. 45).
In DAbreus study, parents show great concern over the issue of menstruation. Parents fear the child will be traumatized by this event, although
DAbreu notes the girls are far more likely to be traumatized not by the physiological event, but by the parents negative and panicked response to it.
DAbreu recommends that parents educate their daughters that menstruation
was just another natural bodily function and should be treated like other forms
of bodily eliminationwithout stigma, but in privacy. When asked about their
opinions concerning the sexual life of their children, the vast majority (89 out
of 100) show alarm and deny that their daughters would evidence such behavior. DAbreu finds that most of the parents are dissatisfied with their own sexual lives, and full of misinformation and fear regarding of their own and their
childrens sexuality. He notes that daughters are not as asexual as many of the
18
Block
19
process has been used only in cases where the perpetrators are employees
there is no procedure to investigate patients abusing other patients. However, at
least this facility officially admits to the existence of abuse. Silence is far more
common. As stated above, historically some institutions have used sterilization
as a means to render heterosexual relations invisible. If no pregnancy resulted
from sexual relations (consensual or otherwise), then officially the relations
never happened.
Some professionals imply that abuse and incest only exists in families of
an inferior socio-economic-cultural level (42, p. 39). However, a venerable
Brazilian psychiatrist told me of one socially prominent man who raped his
cognitively disabled daughter and then institutionalized her in a psychiatric facility in order to hide the evidence. In the 1980s and 1990s the topic of sexual
abuse is virtually absent from the Brazilian literature, and some professionals
express the belief that it was not a problem in Brazil. Yet, twenty-seven out of
the thirty professionals that I interviewed on the subject have dealt with people
with cognitive disabilities who were sexually abused. These professionals feel
that this population is particularly vulnerable to sexual exploitation. During the
course of this research, I was told of dozens of cases of abuse and incest of
Brazilian adults and children with cognitive disabilities. In all cases the individuals know the perpetrators; they are family members, neighbors, fellowstudents, or other acquaintances.
Coelho (1987) locates the problems faced by individuals with cognitive
disabilities as products of social, economic, and cultural context. He discusses
abandonment, prostitution, and homosexuality as resulting from corrupting influences, and concludes that institutionalization in special schools for abandoned youth and psychiatric hospitals is no solution. On the issue of marriage,
he states that although choosing a partner and raising a family are considered
human rights, the issue is a complicated one, especially in the Brazilian context.
He believes that, depending on the level of functioning, some individuals might
be capable of marriage, but stresses the necessity of considering the emotional
maturity and financial security of the individuals. He states that marriage is
possible in developed countries because there is a social infrastructure providing adequate economic support for the individuals, and preparation and
training regarding birth control. However, in 1987 this did not exist in Brazil:
Given our [socio-cultural] reality, expecting the mentally deficient, even high functioning ones, to make good use of this condition is to lack the least bit of common sense and
to have a high level of irresponsibility. (42, p. 712)
Coelho states that in Brazil survival was difficult for those of average intelligence, and doubly difficult for those with cognitive disabilities.
People with cognitive disabilities who come from middle class backgrounds often encounter more substantial barriers to marriage and children,
20
Block
than those living in or near poverty. Prosperous parents have a greater ability to
control (and limit) the social lives of their children, since they can arrange for
constant supervision. Even if parents encourage their children to have typical
life experiences, there are virtually no opportunities for gainful employment
that would pay enough to support a middle-class lifestyle (this is a problem for
the Brazilian middle class as a whole, not just those with disabilities). The
responsibility for support falls entirely on the family, because the laws concerning social security for people with disabilities in Brazil are so tangled that it is
virtually impossible to qualify. Even if successful in wading through the bureaucracy, social security gives only a few hundred dollars per month. Parents
with enough money sometimes choose to support their married child with disabilities and any grandchildren who might follow. In some cases, parents make
sterilization a precondition before marriage is allowed. Such parents are considered liberal, since they are at least allowing their child to have a sexual life. I
was told of one case where a grandmother sought custody of her grandchild on
the grounds that the mother was incapable of caring for it. The judge supported
the mothers right to keep her child.
As Brazilian cultural attitudes become more tolerant of increased sexual
freedom, the idea of individuals with disabilities having sexual lives becomes
more acceptableat least for individuals with disabilities that are physical
rather than cognitive. By the late 1980s disability rights movements formed in
Sao Paulo and Rio de Janeiro. By 1981, groups begin exchanging information
and publishing papers containing extensive bibliographies concerning sexuality
and disability. Sexuality is recognized as a human right. This includes rights to
information, education, and training, the right to marry and have children, and
to receive community services such as counseling for family planning, marital
or sexual dysfunction, and genetic counseling (43, p. 9). At first these movements consist primarily of individuals with physical disabilities, but slowly people with cognitive disabilities become more involved. Marilda Novaes Lipp
(44) writes in support of the idea that with the appropriate education and training, individuals with cognitive disabilities are capable of fulfilling sexual relationships. She states that even the most dependent individuals are still sexual
beings with the same emotions, desires and impulses as other people. Lipp
derides the historical tendency of parents, professionals and society to ignore
this fact:
In this day and age this hypocrisy is falling to pieces and society is beginning to accept
the idea that all beings have the right to their sexuality as long as it is not used to the
detriment of others. (44, p. 8)
21
It is necessary that these youths be protected from the wickedness of certain people, but
this should not prevent them from participating in activities with the family outside the
house. In the case of a young woman, when those responsible judge that they are not
able to totally protect her, a tubal ligation ought to be discussed with a doctor as a valid
alternative to an unwanted pregnancy. (44, p. 21)
22
Block
have children and live typical lives for people of their socio-economic backgrounds. The Brazilian social system may not be capable of supporting them,
but it is also incapable of preventing them. Probably the vast majority of those
who might be considered cognitively disabled (through diagnostic measurements) will never be in a position to receive an official diagnosis. Perhaps they
have lives where cognitive disability is not a handicap. In a context where
literacy is unnecessary for economic survival, and many people of all mental
abilities are illiterate, what does it matter if a person cannot learn how to read?
Some Brazilian professionals fight to keep individuals out of a system that
will segregate them from their family and familiar life. In one case, a group of
professionals wanted to send a young woman on a daily round-trip commute of
six hours in order to receive specialized educational services. The director
of the program argued that the woman was happy and functioning quite well in
her community with her family. If disability is a function of context, then the
director argued that this woman is not disabled. She did not want this woman to
commute six hours every day in order to learn how to be disabled. In contrast
to Assumpca o and Sprovieris research, twenty out of twenty-five professionals
that I interviewed on the subject believe that marriage by individuals with cognitive disabilities can succeed when given the appropriate support. Eighteen out
of twenty feel that raising children is also possible, with support. Many of these
professionals know of couples with cognitive disabilities that have succeeded in
both marriage and parenthood.
Beginning in the late 1980s, researchers such as Rosana Glat (1989, 1992)
and her students Arthur Militao (1991) and Ada Martinelli Saraiva (1993) have
asked individuals with cognitive disabilities for their opinions on life issues
such as sexuality and marriage (34,35,36,37). Glat collected the life histories of
35 women with cognitive disabilities of different ages and social backgrounds,
asking questions about all aspects of their daily lives, including family, work,
friendships, and romance, and their perceptions of their own disabilities. Like
Lipp (1986), Glat stresses that individuals with cognitive disabilities do not
differ from anyone else in their desire for sexual and nonsexual relationships.
The only difference is the intense repression experienced by these individuals.
Glat (1989) finds that women with cognitive disabilities are receiving messages
from family and professionals that marriage, children and an active sexual life
are not for you (34, p. 131). The women respond to this repression by having
hidden romances. Glat states:
Perhaps one characteristic of this group of women with mental disabilities that might be
considered atypical, (at least by the norms of Rio de Janeiro), is how little actual physical contact with men there is in the so-called sexual relationships that they maintain. The
majority of those interviewed spoke of their romances in a quite ingenuous and platonic
manner that is definitely not common nowadays. (34, p. 129)
Yet some of the women interviewed do express a desire for marriage and children. Glat provides examples of the desire and subsequent familial repression.
23
(. . .) Now, his mother doesnt want to know anything about romance or marriage.
She doesnt? Why doesnt she want to know anything?
Ah, its that his mother always says to me that he, that he is an innocent man, I also am
an innocent, because we are, are exce, exceptional, we cant marry.
And you really want to get married?
No, I cant marry him. He wants to, now but I cant marry.
Is that so? Why cant you marry, Ivone?
Its like this, I cant marry because, because of my mother. Because of our, because of
our, like, its, its, retardation (silence). Its because of this that we cant marry.
You said that you cant have children, is that it?
Thats so.
Thats so, but you can get married.
Thats what he wants.
Ah, he wants to marry, but he doesnt want children. Or is it that he wants children?
He wants to have children, he wants to have children in this life. Now but it happens that
we cant that I already told him this, like with my mother, then my mother just said that
she doesnt want this.
That she doesnt want you to have children?
Of course. (Ivone, 35 years) (34, p. 134)
Glat finds that individuals with cognitive disabilities are being held to standards
of behavior that people without disabilities would find difficult to maintain.
One of Glats informants claims her family treats her the same way they treat
her sisters, but she is the only sister who has been sterilized, despite the fact
that her behavior is probably not all that different from that of her siblings.
Sexuality has become a fashionable topic and is being discussed with more
frequency and openness than in the past, but it is questionable whether practices
are changing. During the course of my observations and interviews, professionals who speak progressively often act repressively, although it is hard to
discern whether this is because of their own professional feelings or whether
they are just following institutional policy. Founding family members who are
now over the age of seventy control policies on sexuality at the vocational
organizations that I visited. The policies at these facilities lag far behind the
current professional discourse. There is a generation gap between the foundercontrolled administration, the younger parents whose children were currently
receiving services, and the professionals employed within the organization.
However, it is impossible to generalize. Two of the most liberal parents interviewed were a couple in their 70s. She was one of the founders of one of the
oldest parent-led agencies. He was a Brigadier General, and for a time, a high
placed official in the military dictatorship. Yet, when I asked about their sons
social life, they told me that they kept completely out of it. He lived at home,
and came and went as he pleased. Sometimes he was gone for days. They
thought he had a girlfriend, but did not ask, feeling that it was his business and
he would share information with them if and when he wished. Based on interviews with 25 men and 26 women, Glat (1992) states that, although all individuals with cognitive disabilities had fewer social opportunities than others, this
was even more the case for women more than for men (37). She credits this to
traditional gender roles that allowed men greater social freedom than women.
24
Block
Thus, while 35% of the women reported being kissed, 52% of men reported one
sexual encounter (37, p. 678).
Glat states that the inappropriate behavior witnessed in individuals with
cognitive disabilities originates, not from the disability but from the structure
of life and education in the wider sense of the word, that these people generally
receive! (37, p. 69). She challenges the assumption that individuals with cognitive disability of whatever degree have more in common with each other than
with so-called normal individuals. She concludes:
Thus, it can be affirmed that it is infantilization and social isolation, and not their
intellectual quotient or neurological problem that prevents them from enjoying a full and
satisfying love life. The result is terrible solitude to which the majority of people with
mental deficiency are condemned, principally when they reach adulthood. (37, p. 72)
I was told of a mother who, upon learning her daughter had been sexually
active, placed a hot hard-boiled egg in her vagina as punishment.
While sexuality was not the only, or even the most obvious example where
parents and professionals misused their authority, it provides some powerful
examples. There is something about the nature of cognitive disability, both in
Brazil and in the United States, that leads parents and professionals to assume
they are justified in having complete control over the fates of their children or
charges (50). Unfortunately, in both countries, cases where important life decisions were made by the individuals themselves, rather than by parents or pro-
25
fessionals, are the exception rather than the rule. In the United States, selfadvocacy movements have formed in the last two decades. Individuals with
cognitive disabilities are now demanding the right to control their own lives and
make their own decisions. A few such groups also exist in Brazil, but some of
those that I observed had become just another medium for professionals to
castigate and criticize the actions (particularly sexual and antisocial behavior)
of the group members. Thus the groups meant for self-actualization are transformed into another means of social control. However, this is not always the
case. Indeed, I was told of one case where the adult students of a vocational
day program successfully lobbied to change institutional policy and be allowed
to have (heterosexual) romances, that could (in socially appropriate ways) have
expression in public.
Because higher functioning adult women are more likely to be kept at
home to care for family, one vocational facility were I conducted research had
more than four times the number of men than women in attendance. Although
there had recently been moves to reintegrate gender-segregated vocational activities, the majority of the women still worked at gender-traditional tasks such
as sewing, weaving, knitting, and embroidering, while the majority of the men
worked at painting, woodworking, printing, and bookbinding. The professionals
were interested in desegregating the workshops not just to broaden the experiences of the women, but because they wanted to avoid all-male situations.
Large amounts of time and energy were spent discouraging men from engaging
in sexual activities with each other. Professionals feared that the individuals
most often engaging in these behaviors would contaminate others, and hoped
that the presence of women in every workshop would inhibit the mens behavior. There were few sanctioned ways that sexuality or romance could be expressed. Homosexual activity was especially discouraged, but heterosexual romances were also repressed. A woman who was flirtatious was seen as a
troublemaker.
According to the professionals that I interviewed, young women and men
transferred into adult vocational facilities have to be trained regarding the
rules of acceptable conduct. They are told: This is a professional work situation. No romance is allowed. If you want to romance, do it somewhere
else. One psychologist states that new students can be a little wild at first,
but usually calm down after they learn the rules. Many individuals attending
the facility that I studied had boyfriends and girlfriends in the community, but
the majority were not allowed the social freedom, opportunity, or privacy. The
vocational center was the only social space many of them had outside of home
and family. Some chose to use this opportunity to do what they could.
I interviewed dozens of professionals: psychiatrists, psychologists, educators, doctors, social workers, physical, occupational, and speech therapists. I
found responses to questions regarding sexuality and cognitive disability to be
26
Block
ACKNOWLEDGMENTS
This research was in part funded by a 1995 United States Department of
Education Foreign Language Area Studies Fellowship. The author gratefully
acknowledges the stories shared by the dozens of Brazilian practitioners and
27
parents of people with disabilities that were interviewed during the course of
this research.
REFERENCES
1. Huggins, MK (1985). From Slavery to Vagrancy in Brazil: Crime and Social Control in the
Third World. New Brunswick: Rutgers University Press. p. 1.
2. Osborn, F (1940). Preface to Eugenics. New York: Harper & Brothers. p. 43.
3. Fairchild, HP (1926). The Melting Pot Mistake. Boston: Little Brown and Company.
4. Shapiro, TM (1985). Population Control Politics: Women, Sterilization, and Reproductive
Choice. Philadelphia: Temple University Press.
5. Stepan, NL (1990). Eugenics in Brazil 19171940 IN The Wellborn Science: Eugenics in
Germany, France, Brazil and Russia. IN Mark B. Adams ed. New York: Oxford University
Press. pp. 111152.
6. Penna, B (1918). Saneamento no Brasil. Rio: Typ. Revista dos Tribunaes, Carmo 55.
7. Stepan, NL (1991). The Hour of Eugenics: Race, Gender, and Nation in Latin America. Ithaca:
Cornell University Press.
8. Nieva, A & Penna, B (1918). Viagem Scientfica pelo Norte da Baha, Sudeste de Permanbuco,
Sul do Piauhi e de Norte e Sul de Goiaz. Rio de Janeiro: Manguinhos.
9. Stepan, NL (1976). Beginnings of Brazilian Science: Oswaldo Cruz, Medical Research and
Policy, 18901920. New York: Science History Publications.
10. Goddard, HH (1913). The Kallikak Family: A Study in the Heredity of Feeble-Mindedness.
New York: The MacMillan Company.
11. Smith, David J. (1985). Minds Made Feeble: The Myth and Legacy of the Kallikaks. Maryland:
Aspen Systems Corp.
12. Dantas, J (1930). A proposito de eugena: degenerados Boletiim de Eugena 2(18):56.
13. Kehl, R (1942). Catecismo para Adultos: Ciencia e Moral Eugenica. Rio de Janeiro: Livraria
Francisco Alves.
14. Kehl, R (1938). Porque Eu Sou Eugenista. Rio de Janeiro: Livraria Francisco Alves.
15. Kehl, R (1935). Lico es de Eugenia. Rio de Janeiro: Livraria Francisco Alves.
16. Kehl, R (1933). Sexo e Civilizaca o. Rio de Janeiro: Livraria Francisco Alves.
17. Kehl, R (1925). A esterilizaca o dos grandes degenerados e criminosos. Archivos Brasileiros
de Hygiene Mental 1(2):6977.
18. Kehl, R (1923). Eugenia e Medicina Social. Rio de Janeiro: Livraria Francisco Alves.
19. Kehl, R (1921). A esterilizaca o sob o ponto de vista eugenico. Brasil Medico 35 (13):1557.
20. Dugdale, RL (1910). The Jukes: A Study in Crime, Pauperism, Disease and Heredity. New
York: G.P. Putnam & Sons.
21. Farani, A (1931). Como evitar as proles degeneradas. Archivos Brasileiras de Hygiene Mental 4(3):16979.
22. Filho, AG (1926). Da higiene mental e sua importancia em nossa meio. Tese de doutoramento:
Faculdade de Medicina de Sao Paulo.
23. Moreira e Costa, PG (1927). Eugenia e Selec a o Teze de Doutoramento: Faculdade de Medicina
de Sao Paulo.
24. Actas e trabalhos da liga (1931). Archivos Brasileiros de Hygiene Mental 4(3):2458.
25. Skidmore, T (1993). Black into White: Race and Nationality in Brazilian Thought. New York:
Oxford University Press.
26. Lopes, JM (1933). Em torno do exame pre-nupcial. Archivos Brasileiros de Hygiene Mental
6(2), pp. 103121.
27. Laughlin, H (1930). The Legal Status of Eugenical Sterilization. Washington: Eugenics Record
Office. Cited in Rodriguez-Trias, M.D., (1982). p. 65.
28. Lemos, J (1932). Consideraco es sobre a esterilizaca o dos anormais e a formaca o dos homes de
genio. Archivos do Manicomio Judiciario 4 (1 e 2), pp. 2131.
29. Vilhena, R (1934). Esterilizaca o das Anormaes.
28
Block
30. Muniz Neto, E (1937). Esterilisaca o e Direito. Penal Recife: Imprensa Industrial.
31. Crossmaker, M (1991). Behind Locked Doors: Institutional Sexual Abuse. Sexuality and
Disability, 9(3):20119.
32. Kempton, W & Kahn, E (1991). Sexuality and People with Intellectual Disabilities: A Historical Perspective. Sexuality and Disability 9(2):93111.
33. Celentano, YO (1977). Menino Sempre. Sao Paulo: Published by Author.
34. Glat, R (1989). Somos Iguais a Voces. Rio de Janeiro: Livraria Agir Editora.
35. Militao, AC (1991). A Visao de Pais e Professores Sobre a Sexualidade de Pessoas Portadoras
de Deficiencia Mental. Mestrado de Educaca o. Universidade Estadual do Rio de Janeiro.
36. Saraiva, AM (1993). A Pessoa Portadora de Deficiencia Mental e as Representaco es Sociais
de Sim Mesmo: Um Estudo de Caso. Mestrado de Educaca o. Universidade Estadual do Rio de
Janeiro.
37. Glat, R (1992). Sexualidade da pessoa com deficiencia mental. Revista Brasileira da Educaca o Especial, 1(1):6573.
38. Parker, RG (1991). Bodies, Pleasures, and Passions: Sexual Culture in Contemporary Brazil.
Boston: Beacon Press.
39. Freyre, G. (1956). The Masters and the Slaves: A Study in the Development of Brazilian Civilization. New York: Alfred A. Knopf.
40. Franca, Jr., O (1986). The Man in the Monkey Suit. New York: Ballentine Books.
41. DAbreu, Aloysio A. (1974). A problematica sexual do excepcional. Mensagem da APAE
1(1):4253.
42. Coelho, EF (1987). Deficiencia Sexual (do Proibido ao Permitido). Porto Alegre RS: Luzzatto
Editora.
43. Sassaki, RK (1981). Integraca o social da pessoa deficiente: o fator sexualidade. CEDRIS
(found in the archives of REINTEGRA [Rede de Informaca o Integral Sobre Deficientes]).
44. Lipp, MN (1986). Sexo para Deficientes Mentais: Sexo e Exceptional Dependente e Nao Dependente. Sao Paulo: Cortez.
45. Assumpca o, FB, & Sprovieri, MH (1989). Sexualidade do deficiente mental: esterilizaca o?
treino? o que fazer afinal? Dialogo Medico 15(5):169.
46. Assumpca o, FB, & Sprovieri, MH (1993). Deficiencia Mental, Familia, e Sexualidade. Sao
Paulo: Memnon.
47. Omote, S (1992). Relaco es afetivo-sexuais e o portador de deficiencia. Temas em Educaca o
Especial 2 (Orgs. Tarcia R. da S. Dias et al). Sao Carlos: UFSCAR.
48. Ribeiro, PR. & Nepomuceno, DM (1992). Sexualidade e deficiencia mental: um estudo sobre
o comportamento sexual do adolescente excepcional institucionalizado. Jornal Brasileiro de
Psiquiatria 41(4), pp. 167170.
49. Vasconcelos, NA (1993). Sexualidade e deficiencia: uma dupla alteridade. Temas em Educaca o Especial 2 (Orgs. Tarcia R. da S. Dias et al). Sao Carlos: UFSCAR.
50. Block, P (2000). Sexuality, fertility, and danger: Twentieth-century images of women with
cognitive disabilities. Sexuality and Disability, 18(4), 23954.