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January 19, 2010 Features

Children with Autism Spectrum Disorders:


Three Case Studies
SEE ALSO

Interagency Autism Coordinating Committee

References

Earn CEUs While Preparing to Serve Clients with Autism

Speech-language pathologists play a critical role in screening, assessing, diagnosing, and treating
the language and social communication disorders of individuals with autism spectrum disorders
(ASD). People with ASD use a variety of communication modes including speech, facial
expressions, conventional gestures (e.g., pointing), unconventional signals (e.g., hand-flapping),
vocalizations, picture symbols, and assistive technology (e.g., speech-generating devices). SLPs
have an opportunity to use their clients' strengths to help determine the most effective
communication modes.
Because a wide range of communication approaches is usedoften in combinationclinical
decisions about unaided and aided augmentative and alternative communication (AAC) techniques
should be made on an individual basis using the principles of evidence-based practice (i.e., the
quality and relevance of available evidence, clinical expertise, and the perspective of the client and

the client's family). Given the variability of symptoms and deficits in ASD and an individual's
changing needs related to communication, it is important for clinicians to explore many AAC options.
ASHA's Guidelines for Speech-Language Pathologists in Diagnosis, Assessment, and Treatment of
Autism Spectrum Disorders Across the Life Span provides information related to assessment and
intervention including a focus on AAC. The guidelines recognize that AAC choices must be based
upon an individual's needs, including learning strengths andweaknesses, level of social
communication skills, and motor abilities. These guidelines and other ASHA policy documents are
now a part of a continuing education program (see sidebar below). These policy documents can help
clinicians navigate the case studies presented below and assist with their own decisions about
assessment and intervention tools and strategies.
The following case studies present three different children with ASD and describe the SLP's
strategies to enhance communication and quality of life. The three case studies demonstrate various
options in AAC intervention that can be used by children of different ages.
Ann-Mari Pierotti, MS, CCC-SLP
Case Study 1: Anderson | Case Study 2: Tait | Case Study 3: Sam

Anderson: Excitement and Joy Through Pictures and Speech


by Sylvia Diehl
Anderson is a 3-year-old boy with ASD who was referred to a university speech and hearing center
by a local school district. He attended a morning preschool at the university center for one year in
addition to his school placement.

History
Birth and Development

Anderson was a full-term baby delivered with no complications. Anderson's mother reported that as
a baby and toddler, he was healthy and his motor development was within normal limits for the major
milestones of sitting, standing, and walking. At age 3 he was described as low tone with awkward
motor skills and inconsistent imitation skills. His communication development was delayed; he began
using vocalizations at 3 months of age but had developed no words by 3 years.
Communication Profile at Baseline

Anderson communicated through nonverbal means and used communication solely for behavioral
regulation. He communicated requests primarily by reaching for the communication partner's hand
and placing it on the desired object. When cued, he used an approximation of the "more" sign when
grabbing the hand along with a verbal production of /m/.
He knew about 10 approximate signs when asked to label, but these were not used in a
communicative fashion. Protests were demonstrated most often through pushing hands. Anderson
played functionally with toys when seated and used eye gaze appropriately during cause-and-effect

play, but otherwise eye gaze was absent. He often appeared to be non-engaged and responded
inconsistently to his name.

Assessment
The Communication Symbolic and Behavior Scales Developmental Profile (CSBS DP; Wetherby &
Prizant, 1993) was used to determine communicative competence. This norm-referenced instrument
for children 624 months old is characterized by outstanding psychometric data (i.e.,
sensitivity=89.4%94.4%; specificity=89.4%). Although Anderson was 36 months old, this tool was
chosen because it provides salient information about social communication development for children
from 6 months to 6 years old.

Intervention
Anderson's team and family members developed communication goals that included spontaneously
using a consistent communication system for a variety of communicative functions and initiating and
responding to bids for joint attention. Research suggests that joint attention is essential to the
development of social, cognitive, and verbal abilities (Mundy & Neal, 2001).
Because Anderson could not meet his needs through verbal communication, AAC was considered.
He had been taught some signs but did not use them communicatively. More importantly, his motor
imitation skills were so poor that it was difficult to differentiate his signs. His communication partners
would need to learn not only standard signs, but Anderson's idiosyncratic signs. Therefore, the
Picture Exchange Communication System (PECS; Bondy & Frost, 1994) was chosen to provide him
with a consistent communication system. Additionally, a visual schedule was used at home and
school to aid in transitions and to increase his symbolization.
Incidental teaching methods including choices and incomplete activities were embedded in home
and preschool routines. In addition, a variety of joint activity routines (e.g., singing and moving to
"Ring Around the Rosie" or "Row Your Boat" while holding hands) that were socially pleasing to
Anderson were identified. These were infused throughout his day in various settings and with
various people. Picture representations of these play routines also were represented in his PECS
book.

Research
Several evidence-based strategies were chosen to support intervention, including PECS (Carr &
Felce, 2007; Ganz & Simpson, 2004; Temple, 2007), visual supports (Bryan & Gast 2000; Krantz,
MacDuff, & McClannahan, 1993), and incidental teaching (Cowan & Allen, 2007; Miranda-Linne &
Melin, 1992).

Outcomes
By the end of the year, a video taken at preschool showed that Anderson was spontaneously using
PECS for requests and protests. He was using speech along with his PECS requests in the "I want"
format. He also used speech alone for one-word requests and for automatic routines such as

counting or "ready, set, go." He shared excitement and joy in several joint activity routines with
various people and referred to their facial expressions for approval and reassurance.
Sylvia Diehl, PhD, CCC-SLP, is an assistant professor in the Communication Sciences and
Disorders Department of the University of South Florida, where she teaches courses in
augmentative and alternative communication, language disorders, autism, and developmental
disabilities. Contact her atdiehl@cas.usf.edu.

Tait: Communicating Emotions


by Jane Wegner
Tait is a 12-year-old boy who was diagnosed with ASD at age 2. Tait is generally healthy although he
has recently been diagnosed with rheumatoid arthritis and is sensitive to pain. He has difficulty with
small spaces and "bottlenecks" where many people are congregated. Tait participates in special
education at a local elementary school. His strengths include being curious, social, and visually
astute. His challenges include communication, impulsivity, and behavior that may include tantrums,
aggression, and property destruction. These challenges have made it difficult for Tait to participate in
activities with peers.

Communication Profile
Tait has a positive-behavior support team and receives speech-language intervention at the
Schiefelbusch Speech-Language-Hearing Clinic. He is a multimodal communicator whose verbal
communication is not understood by most people. He uses a Palm 3 (Dynavox Technologies),
pictures, idiosyncratic signs, gestures, and some words to communicate.

Assessment
Tait's communication was assessed with the SCERTS Assessment Process (SAP; Prizant,
Wetherby, Rubin, Laurent, & Rydell, 2006) in spring 2007. As a criterion-referenced, curriculumbased tool, the SAP determines a child's profile of strengths and needs based on his or her
developmental stage in the domains of social communication and emotional regulation. Tait was in
the Language Partner stage of communication. We collected data in three contexts: school, home,
and an intervention session in the Schiefelbusch clinic.

Social Communication
Tait's strengths in the area of social communication included engaging in reciprocal interactions,
sharing attention to regulate the behavior of others, and using several modes of communication. His
needs in social communication included sharing a range of emotions with symbols and sharing
intentions for joint attention by commenting on objects, actions, events, or requesting information
across partners and contexts.

Emotional Regulation
Tait's emotional regulation strengths included responding to assistance from a familiar partner that
he trusted, recovering from extreme dysregulation with support from a familiar partner, and using a

behavior strategy (holding a block of wood) to remain focused and calm in some familiar
environments. His needs in the area of emotional regulation were seeking assistance with emotional
regulation from others, responding to assistance across contexts, and responding to the use of
language strategies across environments.

Transactional Support
Transactional support was strong in some areas. For example, all of Tait's partners wanted him to
learn and communicate more conventionally and he had consistent, responsive communication
partners at home. Tait needed the same responsive style across all partners and the consistent use
of visual and organizational supports as well as his AAC system to enhance learning and
comprehension of language and behavior.

Intervention
Goals included:

Increased use of emotion words on the AAC device.


Commenting on objects, actions, or events.
Choosing what he needs to calm himself from choices offered (from an adaptation of the 5-

point scale by Buron and Curtis, 2003).


Transactional goals included:

Using augmented input (Romski & Sevcik, 2003) with redirection, expansion, and modeling

by Tait's partners.
Providing a binder with a schedule and social stories (Gray, 1995) for preparation for

activities.
Making an AAC device always available and using an interactive diary developed by his

mother.
These supports were implemented in activities of interest to Tait such as holidays, his life in photo
albums, tools, and events at home.

Outcomes
In the past two years, Tait has made many communication gains. His AAC device has more than 200
pages of icons, which he accesses independently to express feelings. He has told us when he is
angry, happy, sad, frustrated, and sick, and he engages in reciprocal exchanges, commenting on the
shared object or event of interest. He has started to mark tense when he comments by using the
"later" and "past" icons on his device to clarify his message. He is able to indicate to his partner what
he needs to calm himself when choices are offered. In addition, he has more communication
partners who are responsive and able to provide him with the learning supports he needs.

Find Out More


View an article and video about Tait.

Jane Wegner, PhD, CCC-SLP, is a clinical professor and director of the Schiefelbusch SpeechLanguage-Hearing Clinic at the University of Kansas. She teaches courses in AAC and autism
spectrum disorders and directs the "Communication, Autism, and Technology" and "Augmentative
and Alternative Communication in the Schools: Access and Leadership" projects. Contact her
atjwegner@ku.edu.

Sam: From Gestures to Symbols


by Emily Rubin
Sam is a 16-year-old young man with ASD and significant cognitive delays. As part of professional
development training for his educational team, this speech-language pathology consultant followed
him for 12 months. Sam now attends a public school special day class that offers frequent instruction
in varied settings to foster independence in the community.

History
Birth and Development

Sam was born six weeks premature following his mother's hospitalization for pre-term labor. His birth
history was significant for low birth weight (2 lbs., 10 oz), respiratory distress, intraventricular
hemorrhage, and a neonatal hospital stay of six weeks. He began receiving intervention services at
12 months of age to address speech, language, social-emotional, and cognitive delays. To date,
evaluations yield developmental age equivalents up to the 24-month level. Since birth, Sam's history
is unremarkable for significant medical concerns and he is in good health. He has passed hearing
screenings and wears corrective glasses.
Communication Profile at Baseline

At 14 years, 8 months of age, Sam spontaneously shared his intentions through nonverbal means,
which included facial expressions (e.g., looking toward staff to request a snack), physical gestures
(e.g., pulling his teacher's hands to his head to request a head massage), and more conventional
gestures (e.g., pointing to request and a head shake to reject). He also used unconventional
nonverbal signals that included biting his hand to share positive and negative emotions and pinching
to protest. Sam occasionally used a few verbal word approximations (e.g., "no," "yes," "more," and
"balloon"), the sign for "help," and picture symbols on a voice output device. However, he typically
used these symbols passively, most often in response to a direct verbal prompt from his social
partner (e.g., "Do you want more?").

Assessment
At baseline, the SAP was administered to gather information about functional abilities in daily
activities through observation and a comprehensive caregiver questionnaire. Given his baseline
presentation, the SAP placed him at the Social Partner Stage, a stage that is relevant for individuals
using pre-symbolic communication. With this profile, functional educational goals based upon parent
priorities and evidence-based supports were determined.

Research

The SAP was derived from longitudinal descriptive group research. It enables providers to select
educational objectives that are predictive of gains in language acquisition and social adaptive
functioning (Prizant et al., 2005). Sam's educational team selected objectives shown to predict an
individual's symbolic growth, such as increasing his rate of spontaneous communication and his
range of communicative functions. The team worked to move him beyond requesting objects to
requesting specific people and actions. The SAP also facilitated the selection of evidence-based
supports such as AAC when developing educational accommodations to address these objectives.

Intervention
Sam's Individualized Education Program objectives shifted from those for passive responses (e.g.,
responding to questions such as "Where did you go?") to initiating communication using AAC (e.g.,
requesting help or other actions, expressing emotions, and making choices of coping strategies).
Throughout the day, Sam accessed an emotion necklace of laminated cards. On the front of each
card was a graphic symbol representing an emotional state (e.g., happy, angry, and sad). On the
back were symbols representing words Sam could use to request actions from others (e.g., "high
five" for happy). This support fostered symbolic requests for communicative functions that Sam
already exhibited spontaneously using nonverbal means at baseline (e.g., expressing emotion by
biting his hand and looking toward staff).
During language art centers, Sam engaged in activities designed to elicit more sophisticated
requests for preferred actions. Rather than identifying pictures, he could choose a preferred sensory
activity, such as a head massage, a back rub, or tickling. Color-coded symbols paired with sentence
templates allowed Sam to create his own sentences for functions already exhibited spontaneously
using nonverbal means at baseline (e.g., requesting comfort by pulling his teacher's hands toward
his head).

Outcomes
Sam's first quarterly review occurred around his 15th birthday. Observations and videos revealed a
higher rate of spontaneous bids for communication and the emergence of symbols to express
emotion (e.g., "happy" and "mad"), request coping strategies (e.g., "head squeezes" and "high
fives"), and form simple sentence structures (e.g., "Jim squeeze head" and "Karen rub back"). By six
months post-intervention, Sam began to take turns, requesting interaction using subject + verb
sentences and then responding to interaction. His teacher might request that "Sam rub back" and
Sam would oblige. At 12 months post-intervention, Sam continues to expand his symbolic language
skills and recently began to generalize his sentences to include names of his peers.
Emily Rubin, MS, CCC-SLP, is director of Communication Crossroads, a private practice in Carmel,
Calif. She is an adjunct faculty member at Yale University, where she has served as a member of its
Autism and Developmental Disabilities Clinic. She is a co-author of the clinical manual for the
SCERTS Model, a comprehensive educational approach for children with autism spectrum
disorders. Contact her at Emily@CommXRoads.com.

Interagency Autism Coordinating Committee


ASHA Provides Input to Interagency Autism Coordinating Committee
by Ann-Mari Pierotti
The Interagency Autism Coordinating Committee (IACC) was established in accordance with the
Combating Autism Act of 2006 (P.L. 109-416.) The committee coordinates all efforts within the
Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). The
IACC includes both members representing federal agencies and the public to ensure that
perspectives and ideas are represented and discussed in a public forum.
The IACC mission is to:

Advise the Secretary of Health and Human Services regarding federal activities related to

ASD.
Facilitate the exchange of information and coordination of activities related to ASD among

the member agencies and organizations.


Increase public understanding of the member agencies' activities, programs, policies, and

research by providing a public forum for discussions related to ASD research and services.
ASHA staff has been attending the IACC's meetings, which include presentations and discussions
on a variety of topics such as activities and projects of the IACC, recent advances in science, and
autism policy issues. Catherine Gottfred, 2008 ASHA president, submitted comments to the IACC on
Dec. 12, 2008 emphasizing the critical role of the speech-language pathologists with respect to
assessment and treatment of ASD. During this comment period, ASHA informed the committee of
ASHA's policy documents related to the role of the SLP with respect to autism. These documents
include a position statement, technical report, guidelines, and a knowIedge and skills statement and
are available online.
Additionally, ASHA staff provided input to the IACC as the agency developed its 2010 Strategic Plan
for Autism Spectrum Disorder Research. ASHA's comments focused on the need for:

Screeners with high sensitivity and specificity that identify early signs of behavioral,

cognitive, and communication impairments that are critical to accurate and early diagnosis.
Evidence-based comparative effectiveness research that identifies effective treatments.
Research that will provide clear indications regarding which services and support strategies

or combinations are most effective.


Research to assess the efficacy of behavioral treatment approaches to determine which

intervention(s) yield clinically significant improvements in speech, language, and social


communication.
Emphasis on sub-groups within the ASD population and their responsiveness to various
treatment approaches.

Research regarding the development of outcome measurement instruments for the ASD

population, especially for preschool and school-aged children.


Comprehensive intervention programs that include a strong family component to achieve the

best outcomes.
Behavioral research related to the effectiveness of speech and language treatment.

ASHA's comments were considered by panelists at the 2009 IACC Scientific Workshop in Bethesda,
Md.
Ann-Mari Pierotti, MS, CCC-SLP, associate director for clinical issues in speech-language
pathology, can be reached at apierotti@asha.org.

References
Article by Sylvia Diehl
Bondy, A. S., & Frost, L. A. (1994) PECS: The Picture Exchange Communication System. Training
manual. N.J.: Cherry Hill.
Bryan, L. & Gast, D. L. (2000). Teaching on-task and on-schedule behaviors to high-functioning
children with autism via picture activity schedules. Journal of Autism and Developmental Disorders,
30,553567.
Carr D., & Felce J. (2007). The effects of PECS teaching to phase III on the communicative
interactions between children with autism and their teachers. Journal of Autism and Developmental
Disorders, 37(4), 724737
Cowan, R., & Allen, K. (2007) Using naturalistic procedures to enhance learning in individuals with
autism: A focus on generalized teaching within the school setting Psychology in the Schools, 44(7),
701715.
Ganz J. B., & Simpson R. L. (2004). Effects on communicative requesting and speech development
of the Picture Exchange Communication System in children with characteristics of autism. Journal of
Autism and Developmental Disorders. 34(4), 395409.
Krantz, P. J., MacDuff, M. T., & McClannahan, L. E. (1993). Programming participation in family
activities for children with autism: Parents' use of photographic activity schedules. Journal of Applied
Behavior Analysis, 26(1), 137138.
Miranda-Linn, F., & Melin, L. (1992). Acquisition, generalization, and spontaneous use of color
adjectives: A comparison of incidental teaching and traditional discrete-trial procedures for children
with autism. Research in Developmental Disabilities, 13, 191210.

Morrison, R. S., Sainato, D. M., Benchaaban, D., & Endo, S. (2002). Increasing play skills of
children with autism using activity schedules and correspondence training. Journal of Early
Intervention, 25(1), 5872.
Mundy, P. & Neal, R. (2001). Neural plasticity, joint attention and autistic developmental pathology.
In L. M. Glidden (Ed.), International Review of Research in Mental Retardation, 23, 139168. New
York: Academic Press.
Temple, K. (2007). A randomized comparison of the effect of two prelinguistic communication
interventions on the acquisition of spoken communication in preschoolers with ASD. Child Care
Health and Development, 33(3), 348349.
Wetherby, A., & Prizant, B. (1993). Communication and symbolic behavior scales. Chicago, IL:
Riverside.
Article by Jane Wegner
Beukelman, D., & Reichle, J. (Vol. Eds.), Augmentative and alternative communication series.
Communicative competence for individuals whouse AAC: From research to effective
practice (pp.147162). Baltimore: Brookes.
Britt, K. (2009, June 21). Autistic children might find their 'voice' with KU project. LJWorld.com.
Retrieved from http://www2.ljworld.com/news/2009/jul/21/autistic-children-might-find-their-voice-kuprojec/.
Buron, K., & Curtis, M. (2003). The incredible 5-point scale. Shawnee Mission, KS: Autism
Asperger.
Prizant, B. M., Wetherby, A.M., Rubin, E., Laurent, A. C., & Rydell, P. J. (2006). The SCERTS
Model: A comprehensive educational approach for children with autism spectrum disorders. Vol. I:
Assessment. Baltimore: Brookes.
Romski, M. A. & Sevcik, R. A. (2003). Augmented input: Enhancing communication development.
In J. Light, D. Beukelman, & J. Reichle (Eds.) Communicative Competence for Individuals Who Use
AAC(pp. 147162). Baltimore, MD: Paul H. Brookes.
Article by Emily Rubin
National Research Council. (2001). Educating children with autism. Washington, DC: National
Academy Press, Committee on Educational Interventions for Children with Autism, Division of
Behavioral and Social Sciences and Education.

Prizant, B. M., Wetherby, A. M., Rubin, E., Laurent, A. C., & Rydell, P. J. (2005). The SCERTS
Model: A comprehensive educational approach for children with autism spectrum disorders.
Baltimore, MD: Brookes.

Earn CEUs While Preparing to Serve Clients with Autism


ASHA's policy documents on the roles and responsibilities of speech-language pathologists in
autism spectrum disorder are now being offered as a continuing education program. To earn CEUs,
complete the following steps.
1. Read the following four policy documents (search "autism" at ASHA's Web site):

Roles and Responsibilities of Speech-Language Pathologists in Diagnosis, Assessment, and

Treatment of Autism Spectrum Disorders Across the Life Span: Position Statement
Principles for Speech-Language Pathologists in Diagnosis, Assessment, and Treatment of

Autism Spectrum Disorders Across the Life Span: Technical Report


Guidelines for Speech-Language Pathologists in Diagnosis, Assessment, and Treatment of

Autism Spectrum Disorders Across the Life Span


Knowledge and Skills Needed by Speech-Language Pathologists for Diagnosis,

Assessment, and Treatment of Autism Spectrum Disorders Across the Life Span
2. Visit ASHA's Online store for product information.
These documents on the role of SLPs with respect to ASD, published in 2006, were developed by
ASHA's Ad Hoc Committee on Autism Spectrum Disorders. Members of the committee were Amy
Wetherby (chair), Sylvia Diehl, Emily Rubin, Adriana Schuler, Linda Watson, Jane Wegner, and AnnMari Pierotti (ex officio). Celia Hooper, 20032005 vice president for professional practices in
speech-language pathology, served as the monitoring officer.

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